Telling Your Child Not to Stare at My Child Isn’t the Polite Thing to Do

An open letter from the mom of a kid with a rare disability

Kathy McClelland
Human Parts
Published in
4 min readSep 9, 2019

--

Photo: Tetra Images/Getty Images

II frequently sense that I am being watched. My son’s microcephaly (small head) and syndromic features stand out to passersby. His head is about the size of a nine- or ten-month-old so kids often mistake him as a baby, although he is too tall…

--

--

Kathy McClelland
Human Parts

Dedicated to sharing hope and encouragement with fellow parents, especially those living with chronic illness or disability.